living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
photo from phone
I use the word “awesome” a lot in this post.
A boy, a ball and a backpack. (a g-tube update of sorts)
Sunday Walk in November
One more step away from the fear…
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