living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
A Tale of Two C’s
24 january 2009 ( 8 months old )
21 January 2009 (fuzzy)
15 january 2009 (babysitter)
14 january 2009 (does this look like a “sick” kid to you?)
5 january 2009 (Whoa. two-thousand and NINE!)