living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
one more link…
happy 1st birthday to the bravest baby in the world
memorial day 2009…snapshots
best. playpen. ever.
Kayleigh, we will see you soon! (updated)
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