Debi West is a phenominal woman.
A woman that lost her beautiful boy, Croy, to a Urea Cycle Disorder.
Debi refuses to sink in her grief…but instead lives her life by the motto T.G.I.T….”Thank God It’s Today”…she inspires me more than I can ever say.
Please grab some tissues and watch this amazing video that a student made to share the work she is doing to fund research, and honor Croy’s memory, through art.
Debi, you are my hero.
Remember, Urea Cycle Disorders (like the one our own little Corrigan lives with) are rare…so they do not receive the funding for research that other, more prevalent, disorders receive. Nearly all of the funding for a cure is done through the amazing fundraising and awareness campaigns of people like Debi…and the families of those affected.
If you feel compelled to help, please send a donation to the National Urea Cycle Disorders Foundation in memory of Croy.