living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
23 months old? Well how in the world did that happen?
Wordless Wednesday: 5 more days until the g-tube
less than a week to go…
Every child comes with the message that God is not yet discouraged of man
the one where I got the smile…and eye-contact…SCORE!
Remember when you had to wait to see if your photo turned out?
the master (in-training) of the VCR
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