Yet another Urea Cycle Disorder angel. *sigh* I found this story in my Google Alert messages today. My thoughts and prayers go out Maddison’s Daddy and Mommy, Eric and Sonja Van Leeuwe. Thank you for sharing Maddison’s story.
I admit that this part, “The Van Leeuwe family were active in trying to find ways to help Madison. They learned of an experimental treatment for disorders like Madison’s being studied in Germany, where newborns were injected with healthy liver cells to help get rid of the ammonia in their blood.” has piqued my interest. As in “can’t sit still for thinking about it” interest.
Corrigan can’t behave in Walmart. The flight to Germany would be exciting (Not!) more like stressful (WORTH IT!)
There will be a cure. Gene therapy could be the fix. I am hopeful. Never stop being hopeful.
For more information on Urea Cycle Disorders (or to make a financial contribution towards a cure!!) please visit the NUCDF. Your donation for Research Funding would be so appreciated. According to Executive Director, Cynthia Le Mons, “With your support, we’ve been able to increase UCD research 400% in the last 5 years! We have come light years-let’s keep the momentum going!”
“Our Dream is for a Cure!“