living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
a 4am countdown. Or countUP? whatever, I am tired.
He is the teacher and I am willing to learn
mommy has too much time on her hands…
Hey Corrigan…say “cheese”!
A Christmas lesson learned the hard way
It’s beginning to look a lot like Christmas…
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