I need your help.
There is a Mama out there standing by the bedside of her very very sick little boy. That little boy was born with the same rare disorder that our own little Corrigan lives with. That little boy has three other brothers that were born with the same disorder as well.
What are the odds?
I know. It is mind-boggling.
This very sick little boy is affectionately called “Captain Snuggles” and he needs us.
His Mama needs us. Four brothers all born with the same disorder? The first with Citrullinemia, Nathanial James, was born on August 24, 2001 and died on August 29, 2001. This Mama has already lost one of her children…and now there are serious conversations about DNR’s (Do Not Resuscitates) for baby David. Captain Snuggles (David) is in very bad shape even though he just fought off a wicked infection and had us all cheering at the top of our lungs.
Here is the most recent photo of our brave little Snuggles.
There is no way that I can tell Captain Snuggle’s story better than his Mama can.
If you would like to learn more about their story please visit Amy’s blog at Transplanted Thoughts.
Her most recent post is heartbreaking for any parent to read. Near the end of her post she writes…
Someone asked me if it was okay to pray for us. Absolutely, Please and Thank You, feel free to send all the love and positive energy you can muster our way. I may struggle within myself about the Powers that may or may not be. But I don’t care if you pray to Vishnu or Buddha or Allah or Yahweh or Jesus or G-d or even, Zeus himself. I want those positive thoughts. I need those positive thoughts. I will be greedy in my quest for as much love and good, wholesome, positive energy as I can squeeze from you.
Does that sound fair? I will pour all my dark, heavy fears, hopelessness and negative energy out into the universe and you guys will send it all back, bright and new, a hundred times lighter and more positive than before.
I do not think that is too much to ask, do you? And if you are so inclined to stop by her spot on the web and leave her an encouraging word it would be SO VERY appreciated.
Amy and David, I am praying for you tonight…every night.
You know Captain Snuggles (David) so much better than I do. You know his sickness and what is at hand in regards to his care. Lord, I ask you to be with little David now, and with his mother Amy as well. Lord, let your will be done in this precious child’s life.
Lord, I pray for David because your Word says I should pray for his healing. I believe you hear this earnest prayer from my heart and that it is powerful because of your promise. I have faith in you to heal Captain Snuggles, but I also trust in the plan you have for his life.
Lord, I don’t always understand your ways. I don’t know why any baby has to suffer, but I trust you. I ask that you look with mercy and grace toward David. Comfort his spirit and soul in this time of suffering and surround him with your presence.
Please guide the doctors in all that they do for him. Give them wisdom and compassion. Please Lord, be with Amy as she stands by and waits for what comes next. Thank you Lord for the blessing of David’s life and through his life may you be glorified and also in mine.
I am off to sit by Corrigan’s bed and do some more praying.
Amy, I hope that you can feel it from Maryland to where you are tonight.