It is that time of year again, time to raise money for brain research for Urea Cycle Disorders! This year’s Challenge is dedicated to Jim Stavas, a seemingly healthy Fire Captain with over 30 years of service in Napa Valley. Jim fell into a coma after sinus surgery and eventually lost his battle to an undiagnosed Urea Cycle Disorder, in October 2007.
From the Napa Valley Register:
“Stavas had fallen critically ill because ammonia levels in his bloodstream were too high due to an enzyme deficiency triggered by the surgery and medications, his family said. When he woke up from his coma, Stavas, once a strapping fire captain, had the mind of an infant, said his wife, Carol Stavas.
Jim Stavas died on Oct. 1, 2007. He was 57. He left behind Carol, his wife of 27 years, and three children.”
Last year’s Cure the Cycle Challenge raised over $68,000.00 for research and this year’s goal is $125,000.00!
Here is a snippet from Corrigan’s Pledge Page:
Why I Ride (virtually): As most of you know, Corrigan was born in 2008 and quickly slipped into a coma. For four long days he lay undiagnosed as his little brain took a devastating hit from rising ammonia. A week after he was born we learned that he had a rare metabolic disorder called a Urea Cycle Disorder, specifically Citrullinemia. In those incredibly dark days following his birth and diagnosis we were connected with Cindy from the NUCDF and other families living with the disorder. We spotted a light at the end of the tunnel in the form of friendship, love, support and a fierce dedication on the part of the NUCDF to fund research for a cure.
The thing is, the NUCDF cannot do it on their own. They are the only ogranization in the world dedicated to research, public awareness and one day, Lord willing, a CURE!
I know that times are tough in this economy and if you know me, you know that I hate to ask for help in almost all aspects of my life, but I am asking for your help. Would you consider making a donation on behalf of Corrigan? My birthday is on the 21st of October and instead of spoiling me with things that I do not need, would you instead send that money to the NUCDF so that they can fund research that will help protect Corrigan’s brain from future damage and possibly save his life?
Your donation is 100% tax deductible and you have my everlasting gratitude for donating any amount, no matter how small, in honor of the fight that Corrigan has fought for the last three years.
I love you. You know this.
Thankfully Corrigan was eventually diagnosed and quickly treated with life-saving dialysis and medication but the effects of four days of elevating ammonia are still felt in his life today.
If you’ve read here long you know about his 14 hospitalizations, two emergency helicopter transports, numerous ambulance rides and special education needs due to the effects of this disorder. While he is making progress and doing so well (We are SOOOO proud of you Corrigan!) we know that each day is precious and that another crisis could be right around the corner. He is well-managed by his amazing metabolic team at Johns Hopkins hospital and has remained stable enough to avoid liver transplant but we want a cure. We want a cure NOW.
This is what the National Urea Cycle Disorders Foundation wants as well and they are working so hard on behalf of kids like Corrigan, so that we can one day kick this disorder in the butt!
With your help, Corrigan’s team raised well over our $500.00 personal goal last year and if you were one that pledged in Corrigan’s name, THANK YOU THANK YOU THANK YOU! Would you be at all interested in making a small (or large, I won’t stop you!) donation for 2011? All donations are 100% tax deductible.
Thank you so much for your continuing support of our family. We love you and are so thankful that you are a part of our lives!