living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
I’m stir-crazy and blogging. ramble ramble ramble.
A stuffed surprise!
Corrigan’s story: countdown to World Rare Disease Day
development delayed-but not impossible
a new path-a new drug
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