living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
There’s always a reason to smile
International Rare Disease Day 2012
the boy in the window
19 years ago today…
Sweets for my Sweeties
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