My post from earlier today was kind of heavy and I know that it can be difficult to talk about the suffering and struggles of loved ones living with rare disease but I want you to know that while it can be hard to watch my child go through the trials of his disorder, there are far more happy moments than sad ones in our life.
This child is joyful.
This child loves to laugh.
This child is sweet.
This child is spirited.
This child is the definition of innocence.
This child is a blessing to our family…disorder and all.
There is always a reason to smile. What is your reason today?