Post-Christmas Post

Christmas was great. It really and truly was. I had no expectations going into this holiday, things have been so up and down with Corrigan’s health there was no time to dwell on anything else really, so when he woke on Christmas morning fully engaged, filled with wonder and awe, and in one of the…

free-flow thoughts.

It is a beautiful wintry day here in the mountains and I much prefer to watch the snowflakes fall from my own windows, rather than the flakes that fell in Baltimore last week, though it really was a lovely view from nine floors up in the hospital too. That sentence structure was awful, but I…

Hospital stay

Little man became very sick on Saturday from his disorder. His ammonia reached 295 and he was transported to Johns Hopkins last night. We were joyful to learn that rescue meds worked to bring his ammonia down to 57 by midnight however it has been slowly creeping back up today to the 150′s. Corrigan has…