living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
Happy Rare Disease Day 2014!
A really long, really overdue “thank you” post.
Bye Bye Blankie. Hello Big Boy
The cost of rare disease
weekend: February 2014 (part 2)
weekend: February 2014
Important Information for Urea Cycle Disorders Patients: L-citrulline recall (USA)
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