living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
ramble on, blog writer
Summer 2014: Swimming
A boy, a ball and a backpack. (a g-tube update of sorts)