If you’d like a little shock with your coffee today, here’s the statement from Corrigan’s 3.5 day stay in December.
THIS is the cost of rare disease. THIS is what a bag and a half (but probably charged for two) of Ammonul costs. And thankfully he was not put on a helicopter and transferred out, can’t even imagine what THAT costs these days.
Compare the pharmacy bill to the pharmacy bills in 2013 (identified with red-outlined arrows)
My oldest (Connor) does not have any disease or disorder, but at the start of his junior year developed difficulty breathing. Shockingly, he had an orange-sized mass in a lower lobe of his lung.
He spent 3 or 4 days in our local hospital before being transferred to Johns Hopkins for another EIGHT days. His Hopkins bill, as you can see, was around $17,500.
Compare that to the three hospitalizations for Corrigan, who lives with Citrullinemia, and you can see his pharmacy bill alone was twice the amount of Connor’s entire eight day stay.
Think about that. It blew my mind three years ago and then yesterday I opened the mail.
Look at that again….
How is that acceptable? Here, take a look at a list price I found, effective January 1, 2017
See that? Between $634.00-$922.00 an ml
That means that the drug that rescues my baby from a hyperammonemic crisis costs between $3k and $4.5k a TEASPOON.
About 30k an HOUR to help him.
That bag you see hanging…a Quarter Million Dollars.