Thanks for stopping by mooney=mc2!
My name is Mindy and I am the wife to a wonderfully patient husband, Mark, who has tolerated my shenanigans for more than 21 years now. (23 years if you count those dating years!) We made two amazing, and totally different boys. Connor is a thoughtful, wise and goofy, yet well-grounded, 19-year old perfectionist. Wow, that makes me feel really old to type that. I must have started having babies at age 6, right? Right? Not buying it? Hmmm.
Our youngest is Corrigan who was born into this world in May 2008 and is, without a doubt, the cause of every single gray hair on my head. He is a dare-devil with a high tolerance for pain and a low tolerance for the word “no” but when he looks at me, really looks at me, I feel like the most important person in the world.
I do not blog for profit. I blog because I never want to forget this amazing, insane, wonderful, stressful life (and if I had to write it, rather than type it, much like dusting my house, it would never get done) and because I love photography but am terrible about actually printing my photos I add a lot of pictures to my posts. So really, I blog because I am lazy. Type, click, upload…voila! Memories there for the taking. Oh technology, I love thee.
I am not an expert on Citrullinemia or Urea Cycle Disorders. I do not know how I could be having only been on this path for 9 years. I respect the wisdom of the families that have been living with this disorder for far longer than we have. I wish that they all had blogs.
Sometimes I talk about Corrigan’s citrullinemia and all of the super fun(not!) stuff that comes along with that diagnosis and sometimes I don’t. When I do “speak” about Urea Cycle Disorders it is only in regards to how it relates to Corrigan. My deepest desire is that there will be a cure for Urea Cycle Disorders very soon and anything that I can do to bring attention to the rare disorder should probably be considered my duty. Awareness is key.
I do not write to impress people with my words or post photographs so that you can think that I am a good photographer. I have terrible grammar and punctuation. We all need outlets and hobbies and this blog is mine.
Finally, I realize that I have two sons but that the blog leans more towards Corrigan than Connor. Connor is into his teen years now and prefers that I do not share as much about him and I nearly always ask Connor permission before posting photos or stories about him. I am careful to respect Connor’s need for privacy and hope that my readers do not equate the fewer Connor-posts with how much I love that boy. He means the world to me but he is growing up and doesn’t need his mom embarrassing him online. Corrigan, however, is different. He comes with extenuating circumstances and his disorder, and it’s rarity, means that there is a wonderful chance here to bring awareness and give others hope. If one day Corrigan decides that he doesn’t want me to share any of his story, I will oblige him as well.
Stick around, read a little and if you feel moved to do so, I would love to hear from you…either in the comments or by email. (email@example.com please put something about UCD or the specific disorder in the subject email so I won’t lose it to Junk Mail or Spam Folder ) Whatever is easiest for you.