living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
A time for change.
Rare Disease Day 2017
National Critical Care Transport Nurses Day
An updated cost of Rare Disease ( you better sit down)
December hospitalization 2016
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