living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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So who are these people?
Want to talk?
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions.
Rare Disease Day 2017
National Critical Care Transport Nurses Day
An updated cost of Rare Disease ( you better sit down)
December hospitalization 2016
First day of Second Grade
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