3 February 2014

There isn’t a whole lot to update here, the month of January felt like one big snow day, and I think Corrigan only made it to school eight days the entire month.  We woke to another 6-7 inches of snow this morning, with some weather reports predicting two more winter-weather events this week. *sigh* We normally hunker-down…

21 January 2014

Approximately 5.62345 minutes after I hit “publish” on my previous blog post, Corrigan threw up and then became progressively sicker as the evening went on. That’s what I get for declaring that he had “beat something” easily. He doesn’t have a stomach virus, but because of his oral aversions the accumulating phlegm from his chest…

Sunshine and Smiles

Remember I said that Corrigan was all fixed up (metabolically) until he caught a virus or something bacterial? Yeah, he made it one week.  Saturday morning he woke completely congested and choking on his own phlegm. He went to bed totally healthy and woke sick as a dog. *sigh* But that is the risk of…

Post-Christmas Post

Christmas was great. It really and truly was. I had no expectations going into this holiday, things have been so up and down with Corrigan’s health there was no time to dwell on anything else really, so when he woke on Christmas morning fully engaged, filled with wonder and awe, and in one of the…

free-flow thoughts.

It is a beautiful wintry day here in the mountains and I much prefer to watch the snowflakes fall from my own windows, rather than the flakes that fell in Baltimore last week, though it really was a lovely view from nine floors up in the hospital too. That sentence structure was awful, but I…

Hospital stay

Little man became very sick on Saturday from his disorder. His ammonia reached 295 and he was transported to Johns Hopkins last night. We were joyful to learn that rescue meds worked to bring his ammonia down to 57 by midnight however it has been slowly creeping back up today to the 150′s. Corrigan has…

A run around the moon.

“Hey, what’s your name?” one little boy asked the other.  ”Run! Run!” the older boy replied, as if he didn’t understand the question.  ”Wanna run with me?” the younger boy asked. “RUN!” the other exclaimed.  The younger boy seemed slightly confused but just shrugged his shoulders, smiled and said “okay! let’s go!” And they ran…