There isn’t a whole lot to update here, the month of January felt like one big snow day, and I think Corrigan only made it to school eight days the entire month. We woke to another 6-7 inches of snow this morning, with some weather reports predicting two more winter-weather events this week. *sigh* We normally hunker-down…
Approximately 5.62345 minutes after I hit “publish” on my previous blog post, Corrigan threw up and then became progressively sicker as the evening went on. That’s what I get for declaring that he had “beat something” easily. He doesn’t have a stomach virus, but because of his oral aversions the accumulating phlegm from his chest…
Remember I said that Corrigan was all fixed up (metabolically) until he caught a virus or something bacterial? Yeah, he made it one week. Saturday morning he woke completely congested and choking on his own phlegm. He went to bed totally healthy and woke sick as a dog. *sigh* But that is the risk of…
Christmas was great. It really and truly was. I had no expectations going into this holiday, things have been so up and down with Corrigan’s health there was no time to dwell on anything else really, so when he woke on Christmas morning fully engaged, filled with wonder and awe, and in one of the…
It is a beautiful wintry day here in the mountains and I much prefer to watch the snowflakes fall from my own windows, rather than the flakes that fell in Baltimore last week, though it really was a lovely view from nine floors up in the hospital too. That sentence structure was awful, but I…
Many of these are repeats but all together show the story of this particular hospital admission. It’s not the prettier part of his life, but it IS his life. You get to take photos of your child on Santa’s lap and at amusement parks, I get to take photos of mine on ambulance gurneys and…
Now that Corrigan is stable, and the crisis is behind us, I can stop updating the previous post. His last ammonia was 30 and today they will wean him from his rescue meds and move him back to home medications. There has been a downward trend in his branch chains over the last few months,…
Little man became very sick on Saturday from his disorder. His ammonia reached 295 and he was transported to Johns Hopkins last night. We were joyful to learn that rescue meds worked to bring his ammonia down to 57 by midnight however it has been slowly creeping back up today to the 150′s. Corrigan has…
“Hey, what’s your name?” one little boy asked the other. ”Run! Run!” the older boy replied, as if he didn’t understand the question. ”Wanna run with me?” the younger boy asked. “RUN!” the other exclaimed. The younger boy seemed slightly confused but just shrugged his shoulders, smiled and said “okay! let’s go!” And they ran…
Corrigan is excellent at labeling the things in his world. His vocabulary is far larger than ever imagined and he surprises us daily with what he knows about the things that he sees. He has excellent eye-sight and can spot the handicapped symbol on any moving vehicle and yells “chair!” (several of his classmates are…
